26 Jul Meet Blake R.
Meet Blake R- Maple Valley, Washington
Blake the Superhero
Blake is a happy 6 year old who is obsessed with sharks, superheroes and Star Wars. Upon first meeting him, you would never guess that he has a terminal rare disease. But on a closer look you would see that he has bruises all over his arms and legs, he gets tired quickly and is smaller than the rest of the kids his age. Just before age 2, Blake was diagnosed with a very rare genetic disease called Fanconi anemia, FA. Fanconi anemia is primarily a blood disease that may lead to bone marrow failure (aplastic anemia), leukemia, and/or solid tumors. FA can affect all systems of the body. FA patients are extremely likely to develop a variety of cancers and at a much earlier age than patients in the general population. Earlier this year, Blake was inpatient at Seattle Children’s Hospital for 40+ days for a bone marrow transplant. He endured 7 days of chemo and received new cells from an anonymous donor. This process wasn’t easy and Blake is still recovering, he will be in isolation until next year while his new immune system grows and strengthens. Through this whole process Blake has been so brave. He is a true superhero.